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HomeHealth NewsNational rare disease registry may improve care for patients

National rare disease registry may improve care for patients

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www.csdsamverkan.se/halsoochsjukvard/raraswedkvalitetsregister/, used with permission. Credit: BMC Global and Public Health (2026). DOI: 10.1186/s44263-026-00276-9″

The Modules of RaraSwed. Figure illustrates an overview of three modules of RaraSwed. Module I (diagnostic) launched September 2023. Module II is underway and will collect patient-reported data. Module III is planned and will collect physician-reported data….

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